Privacy Policy

Who we are

Our website address is:


A cookie is used to track when you have submitted an application to prevent excess application forms from being submitted.

Embedded content from other websites

We use a geo-blocking service to restrict the application site to users in the United States (48 contiguous and Alaska and Hawaii). Your IP is checked via a database and will determine your access to this website.

Who we share your data with

We only share required data with your provider to verify your diagnosis. Any other data that is shared with other services are done so with your permission for communication reasons. We may also use this data for applications for grants or for research reasons from verified institutions after the data has been anonymized.

How long we retain your data

This website retains your data until we enter it into our own local databases. That data is held indefinitely as a hard copy in a secured location. You may request to view this file at any time as a member. You may also request that the file be destroyed if you no longer wish to retain your membership. We may keep certain data such as your full name or other identifiable information for our own records for research and funding reasons.

What rights you have over your data

We retain this data for membership purposes and for research and funding reasons. Data access is restricted and access given only when required.

Where your data is sent

All data sent via the application form is sent to our membership team on submission via email. Any Protected Health Information (PHI) that is transmitted by your provider at your request is sent to us via fax or email. This data is printed off and placed into your physical file and deleted.